The Chauvette Family Spot: Update and Pics

We're still continuing to have our ups and downs with Kamryn's seizures.

A. My district's insurance company switched Sept. 1, and I completely forgot, so when we finally talked to the neurologist and he prescribed a new medication, Trileptal, we tried to pick it up to the tune of $177.99, because it showed that my insurance had expired. Yikes! Then I had to go home and find the new cards which took a while since they were in a stack of unopened mail in a secretively marked envelope with a company name that I didn't recognize. By the time I found them, the pharmacy was closed and I had to wait until after work the next day to pick it up.

B. So, then she had another last night around 9 pm, which was about two hours before we were due to start her new medicine. Grrr.... We went ahead and gave her an extra pill of phenobarb and started the rest of the medicine as the doc had prescribed. We're taking her off of Keppra and starting the Trileptal slowly. For 1 week, we'll decrease her from 2 to 1 ml of Keppra and introduce 1/2 ml of the Trileptal. Then next week, no Keppra and 1 ml of Trileptal. I don't know a lot the new medicine or why he chose to switch her. I'm guessing that it is a little stronger than Keppra and used with older kids. Keppra was probably best for newborns and was hopefully going to be enough until she grew out of the seizures. But that doesn't appear to be the case just yet.

She did not have another seizure that night or at all today. She's acted like she felt fine and nothing is bothering her, except of course when she thinks we don't feed her enough! The girl would take down a Big Gulp if we'd let her!

We called and texted the neurologist today, but did not get a response. It's annoying, but I'm sure he feels the same about us. We're going to let it go for now, but if she has another, we'll be hounding him for some contact. I don't like us being the ones to just make up what to do with the medicines when she has a seizure, though we are getting pretty good at predicting what he would say...

Hopefully, the new medicines will prove effective for her. I'll keep y'all posted if anything changes significantly. Though we are having them from time to time, at least they are only singular occurances that we can get back under control fairly easily, not several day stints like before.

On a brighter note, here are some pictures that I took today of the girls. I was trying to get a good one of the two of them for them to put up during her dedication at church. There are also pictures of Kenedy at a birthday party. It was for her new friend from school, Evie. She had a blast running around the bouncy place with all of her little girl friends from school.

Didn't pick this one, it looks like Kamryn is getting the Heimlich.