Monday, December 15, 2008

A Star Is Not Born

Here are some videos of the children's Christmas musical at church last weekend, Dec. 6.

Okay, so she hasn't got much stage presence, but come on...she's 3! You'll see her waving at me (I'm sitting in front of the kids), running off of the stage to sit with me, turning random circles, falling off of her step, halfway doing the hand motions for the song muchless the singing the actual song, staring off into space, as well as showing off some butt crack. I laugh every time I watch these (and see something different every time).

She shouldn't be hard to find. Unfortunately for the production, she's on the front row...

Enjoy!

This Little Light of Mine

Having trouble uploading the other videos... hopefully this will do for now...

Sunday, December 7, 2008

A new baby...

In case you are interested, Scott's cousin Kyla had her baby last Wednesday. I think she's got us all beat on the whole birth announcement bit...


http://www.keyetv.com/mediacenter/local.aspx?videoid=21502@keye.dayport.com&navCatId=5

There will be a short commercial intro, but then you can see their announcement via the news story!

Top that!

Welcome to the crazy family Addison Stevenson!

Monday, November 24, 2008

Rollin', Rollin', Rollin'

Kamryn is rolling from back to front now. Here is the video, as requested...

PS - we're at 11 1/2 weeks....

Friday, November 14, 2008

Updates, We Have Updates...

So much for doing better about posting regularly...
Oops!

Well, here you go. Updates...
Kamryn is doing very well. This week marked her 10th week without a seizure!
She went to the neurologist on Monday. We didn't see our regular neuro., we saw his PA, which was a little wierd. She was great though. We didn't do an EEG, just a chat with the PA (Tasha), and some blood work. They like to get babies off of phenobarb starting around 9 months. The plan is to go back in 3 months, have an EEG to check for evidence of any remaining seizure activity, and come up with a plan for pulling back the phenobarb. If she doesn't have seizures when pulling back, WOOHOO, and if she does, we'll up the other medication she is on, Trileptal. Obviously, we are rooting for the 1st of the two options. We are on a great track to get there. They measured height, weight, head, etc. She is 22 lbs and 28 1/2 inches. Still off the charts for her age.

General info on Kamryn. She is 6 months old and eating solid foods like cereal and vegetables. She is a great baby...very laid back and happy. She grins all of the time. She is finally starting to roll over. She did her first roll on Tuesday night, and another couple tonight. (back to front)

Kenedy is going well. She is still loving school and never wants to leave at the end of the day. She is going to be a part of our church's children's Christmas musical in a couple of weeks. Her first official showbiz debut. : ) Ought to be interesting.

Trying a new way of posting pictures. There should be slideshows of our pre-Halloween pumpkin patch pictures, as well as actual Halloween pics.

Enjoy!

Thursday, October 9, 2008

I'm back already... Back off...

Readers forgive me, for I have sinned. It's been 3 weeks since my last blog.

Alright, alright! Quit harassing me already. I'm blogging, I'm blogging... Here are some updates and pictures since last I posted...

Kamryn...
As of today, she has not had a seizure in 5 weeks. WooHoo! Growing like a weed, but hasn't outgrown this dose. : ) Some of the 6 - 9 month pajamas we just got her are getting too small. We're about to have to break out Kenedy's 12 month clothes box---for the 5 month old! She's having a big old time. She just smiles all of the time. Sleeps beautifully. Is trying to roll over. Started cereal. Tried out carrots and loved them. Got dedicated at church. Drooling like she's trying to get a tooth in, looks like an eye-tooth! Everyday is an adventure. Pics below, videos at the bottom...

Hangin' with Hunter

First try with cereal...

Not a huge fan... Lovin' the carrots though!

Kenedy...
She still loves school. Thank goodness, I suppose. I just hate to be the parent that can't get their kid to leave at the end of the day. : ) Speaking of her school, they've got a fundraiser going on and have even got the 3 year olds hocking the wares! So if you feel the need to support the Giddens Elementary PTA and buy some stuff from Kenedy you can go to the online site (http://www.danielsfundraising.com/store/brochures.php?sID=1507380) and type in her Seller ID, 1507380, and she'll get credit for the sales. She can earn prizes for the number of items she sells. She has her eyes on a set of walkie-talkies...Kenedy is still quite enthralled with her baby sister and wants to help with her often. (a lot of times it is to try to get out of something else). She is also very excited to be a flower girl in Audra's wedding, though she likes to call it a flower princess. She also has decided to be Princess Aurora for Halloween. (Sleeping Beauty for all of you who are out of the know as far as princesses go).
Below are some more recent pictures of her...



Trying on her Halloween costume (just to make sure it fit...)
Notice the cute little bob haircut compared to the raggedy-looking flower girl pics.
Practicing to be a "Flower Princess"


Wylee...
After the round of antibiotics and anti-inflammatories, Wylee's "mass" was no longer red and inflamed. We were waiting for the vet to call us back about the surgery to remove it, and while they were busy not getting back to us, the mass just disappeared. It's like it was never even there. CRAZY! But I'll take it.






Trying to get over, but mostly hanging out on the side and pushing around...

First attempt at cereal. She's wasn't a real big fan. She'd rather had her bottle.

First vegetable...Carrots...Doing a lot better with those. If only Kenedy wasn't such a goober! : )

Monday, September 15, 2008

A very busy weekend & Wylee Update

When last we talked, Wylee had been to the vet on Tuesday with a follow up appt scheduled for Thursday. I never got back on the blog after that with all of the hubbub this weekend. Sorry!

So, Wylee's appointment on Thursday went as well as could be expected. The "mass" looked a lot less inflamed, but was still a little swollen. He saw a different vet than on Tuesday, but apparently the notes she left were very detailed and the nurse guy was the same, which helped. She tried to draw some liquid out of the mass, but didn't get much different than before. When she pulled the needle out of the area though, Wylee's swollen mass area began leaking. They thought it would just stop, but it didn't, so the vet tried to squish all of the liquid out. Wylee wasn't a big fan of that! When it just kept coming out, she asked for a bigger needle and poked him a few more times to help get more out. He really didn't like that. They didn't get it all out, but it slowed enough that they decided to stop.
The slide didn't show any cancerous cells, but there was no indication of what the "mass" actually was either. It think that God is trying to tell me something.
This vet thought that surgery was definitely in order to find out what was causing the issue. She wasn't able to do the surgery, the vet who would do it was not in town that week. They were going to consult with her, make sure she was comfortable doing the surgery, and then they would call us back. That was supposed to be today, but we didn't hear from them. We'll be calling tomorrow.

This weekend's hubbub...
The girls got lots of grandparent time this weekend. Dinner with Pepere and Memere on Friday, Grandma and Grandpa came in on Saturday, with visits from Memaw and Papa, Memere and Pepere, Tiffany, Kevin, Hunter, Mary Alice, Laurie, and Aubrey.
Dedication on Sunday went well. We were worried about Kenedy being nervous about being on stage in front of everyone in that great big church, so we had talked it up all weekend. Who knew it would backfire on us? She did a really good job on stage, but when the dedication was over and it was time to leave the stage, she whined very loudly, "but I want to stay on the stage!" for all to hear. The children's ministry coordinator, went ahead and mentioned the children's Christmas musical was coming up and that we may want to keep that in mind for Kenedy... : ) She is definitely all drama, besides the fact that she sings her way through most of the day, with big showtunes-style endings. I think she'll have quite the time in the musical!
We visited with Janma, Chad and Jamie, went to eat with the family and continued the busy-ness throughout the day.

I'll post pics from the weekend when someone sends them to me, as it is hard to be the one taking pictures when you are on stage.

Tuesday, September 9, 2008

Kamryn's Stats and The Other Problem Child

Today was Kamryn's 4 month pediatrician appointment. We, and everyone else around us, have been waiting for this one to see how she is measuring up these days. (because it affects the meds and she's just ginormous!)
She weighed 18 lb. 10 oz. and was 27 inches long, which literally put her "off the charts" in both categories. She is above the 100th percentile mark. The doctor remarked that he had a some 1 year olds that were her size. Yikes! He looked at his chart a little more and said that this height and weight was average (50th percentile) for 9 month olds. We knew she'd been growing the last two months, but geez!!! At her two month visit, she was just around the 50th percentile for her age.
He thinks that is a good time to go ahead and introduce solids. So we'll have our first round of cereal this week. Look for pictures soon.
She also got the second round of a set of four vaccines today, one orally and three shots. She didn't care for that much, but settled down fairly quickly. She went to work with me for an hour, since I was running late to a meeting from her appointment. The folks at the campus I was at appreciated her attending the meeting. Of course, we may not have been as productive as normal...
Other Kamryn related stuff:
She hasn't had a seizure since Thursday.
Her dedication at church is this weekend.

On to the other problem child...
No, not the crazy 3-year old, it's the 7 year old, Wylee. Last night, he was his normal busy active self. This morning he woke up and wouldn't eat and was very lethargic and just laid around all morning. Obviously, not his normal self. He also has a booboo on his leg, which we thought could be getting infected making him feel bad. So we scheduled an appt this afternoon at the vet.
At the vet, he was running a fever (whatever that is for a dog) and was walking gingerly. We thought it was due to his leg booboo at first, but it wasn't it. (This will eventually get into "Too Much Information" land, so feel free to skip to the end, if you don't want to hear about doggy insides.)
For a year now, we've been operating under the assumption that he had a small hernia, which appeared to be a bulge on his belly by his rear leg. Today, though I hadn't noticed it when I put him in the car, the "bulge" had substantially increased in size and was red and inflamed looking. The doctor decided that was what was making him feel bad, as it was red and angry looking and much bigger than it has been for the last year. They tapped the bulge to see what kind of liquid was in it, and got nothing but some bloody liquid. She prepared a slide of it to study and then also talked other options with me. We could do a rectal to see if everything was where it was suppose to be, an x-ray to see if they could determine if any organs were in what appeared to be the hernia, or a sonogram, which they were not equipped for at 5 pm. So we did two of the three...
The rectal turned out to be inconclusive, she had small hands and he was too large a dog to really get a good feel for the matter... We went ahead and did the x-ray, hoping to get a good shot of the abdomen to see if we could determine if there was indeed a perforation of the abdominal wall and if there were organs that were trapped in the hernia that could be having blood circulation cut off to them, which could end up being a fatal issue if not dealt with in a timely enough manner.
After the x-ray was developed, she showed it to me and explained it enough for me to understand. There was a very clear abdominal wall, and appeared to be in tact with no perforations. All of the organs (liver, intestines, bladder, etc) were in place and accounted for above the abdominal wall. All of this means that it is almost certainly not a hernia.
The problem is... what is it? (Not that we haven't played that game before!) Right now she is calling it a "mass." It could be a tumor of some sort or possibly be cancerous, but we don't know right now. Most likely he will need surgery, but that can't happen until the swelling and inflammation goes down. So, she prescribed an antibiotic and anti-inflammatory and wants to see him on Thursday to decide how to proceed, but if he isn't back to himself tomorrow afternoon, she thinks we should bring him in.

Hopefully the mediation will do it's job and Wylee will start feeling better. He looks pretty pathetic right now. We'll keep you updated on this saga as it unfolds.

Friday, September 5, 2008

Update and Pics - Sept. 5

We're still continuing to have our ups and downs with Kamryn's seizures.
A. My district's insurance company switched Sept. 1, and I completely forgot, so when we finally talked to the neurologist and he prescribed a new medication, Trileptal, we tried to pick it up to the tune of $177.99, because it showed that my insurance had expired. Yikes! Then I had to go home and find the new cards which took a while since they were in a stack of unopened mail in a secretively marked envelope with a company name that I didn't recognize. By the time I found them, the pharmacy was closed and I had to wait until after work the next day to pick it up.

B. So, then she had another last night around 9 pm, which was about two hours before we were due to start her new medicine. Grrr.... We went ahead and gave her an extra pill of phenobarb and started the rest of the medicine as the doc had prescribed. We're taking her off of Keppra and starting the Trileptal slowly. For 1 week, we'll decrease her from 2 to 1 ml of Keppra and introduce 1/2 ml of the Trileptal. Then next week, no Keppra and 1 ml of Trileptal. I don't know a lot the new medicine or why he chose to switch her. I'm guessing that it is a little stronger than Keppra and used with older kids. Keppra was probably best for newborns and was hopefully going to be enough until she grew out of the seizures. But that doesn't appear to be the case just yet.

She did not have another seizure that night or at all today. She's acted like she felt fine and nothing is bothering her, except of course when she thinks we don't feed her enough! The girl would take down a Big Gulp if we'd let her!

We called and texted the neurologist today, but did not get a response. It's annoying, but I'm sure he feels the same about us. We're going to let it go for now, but if she has another, we'll be hounding him for some contact. I don't like us being the ones to just make up what to do with the medicines when she has a seizure, though we are getting pretty good at predicting what he would say...

Hopefully, the new medicines will prove effective for her. I'll keep y'all posted if anything changes significantly. Though we are having them from time to time, at least they are only singular occurances that we can get back under control fairly easily, not several day stints like before.

On a brighter note, here are some pictures that I took today of the girls. I was trying to get a good one of the two of them for them to put up during her dedication at church. There are also pictures of Kenedy at a birthday party. It was for her new friend from school, Evie. She had a blast running around the bouncy place with all of her little girl friends from school.

Didn't pick this one, it looks like Kamryn is getting the Heimlich.
Kenedy took this one... Another no...

Here's the winner!

This one was cute of just Kamryn...

Evie's Birthday... It took forever for her to move out of the toddler bouncyhouse!

With Evie in the little bouncy...
but when the others are this tall, who can blame her... She eventuall did it though.
Running around with the other little girls in the dino bouncyhouse.
Giving Evie her Princess stuff.

Sunday, August 31, 2008

Update - Sunday August 31, 2008

As most of you know Kamryn had a seizure on Thursday night. The doctor called Friday and was a little perplexed. Kamryn is taking 25% more medicine than a baby that is 18lbs. And since she is not 18lbs he is not sure why she is talking so much. She is not showing any side effects so he is not concerned about that. It is more about the battle to keep her levels up. He ultimately decided that we would mover her off the liquid medicine and put her on a pill. So now she take 4 pills a day that we dilute in her bottles.

I would say that is all but no, Kamryn had a seizure this afternoon. She had one about 2pm, but we gave her the medication and she has not had one since. It seems that she is not feeling real good. She has had a cough for the last day or so and she has been extremely sleepy today. So we are hoping that is just a combination of medicine and not felling well.

As always we thank everyone for their support and love. Please keep us in your prayers

Thursday, August 28, 2008

Kenedy's New Bike

Since Kenedy recently got a belated gift card from Uncle & fam, we took it to Wal-Mart to pick a new toy. Here are some pics of Kenedy on her new big girl bike. She likes it but is not as good at keeping the pedals going as she was with the tricycle. She's an even bigger fan of the horn and basket that we put on it!



Kenedy is doing well at school. She really enjoys it, which I imagined she would. She's finally starting to be a little more forthcoming with details of her day, but ocassionaly we still get the "nothing" and "nobody" answers. Grrr! Her only issue with school is the automatic flushing toilets. She is definitely not a fan of those, prior bad experiences I guess. The aid in her class is going with the her and covering up the sensor with her had everytime Kenedy needs to go potty. Bless her heart! They've got some kind of velcro contraption planned so that Kenedy can start going in on her own. : )


On a less happy note, Kamryn had a seizure this evening, around 6:30 pm. We gave her a loading dose and are right now waiting on the doc to decide if we want to keep the meds the same otherwise. He also mentioned that it may be time to consider a different type of medication too. We'll see, as this was all via text message... She's doing better so far, so assume all is well, unless I post otherwise later on.

Monday, August 18, 2008

Kenedy's First Day of School and Kamryn Info

Today was Kenedy's first day of "school." We've been talking it up for the last week, hoping that it would de-emphasize the not going to Leslie's part. She did really well. Hardly took the time to kiss Kamryn and I good bye! When I went to pick her back up, her teacher said that she had a really good day. She did have a potty accident though. Apparently, she went to tell the teacher she needed to go to the bathroom, but when she finally got through explaining, it was too late. And that is why they ask to us to send a change of clothes... Hopefully this was just a first day thing, now that she has her bearings and knows where the bathrooms are, we won't see anymore accidents. We'll continue to send a change of clothes, just in case... She said she had fun and liked her teachers and new friends. So far so good. Here are some pictures of this morning.

Eating breakfast after her bath.

She is excited about school!

Toting her lunch box.


In the school parking lot, backpack and all.


Tromping down the hall.


In front of her locker!

Stacking blocks in the classroom. But oops!, this is the wrong classroom!



Bonked her head on her new locker, in the right classroom.



All better now...


FYI- Kamryn had a seizure last night (Sunday, 7:30pm, right before we gave her the nightly dose of phenobarb), and of course we couldn't get ahold of the neurologist. We gave her an extra dose of phenobarb, guessing that that would be what the neurologist would do. It held her all night and she was a happy girl this morning before we took her to Leslie's. We told Leslie about what was going on and she did well all day. Scott finally got ahold of the neurologist (actually his nurse) late in the morning and her medicine has now been shifted to 5 ml of phenobarb 3x/day, instead of 6ml 2x/day. She'll basically get an extra 3ml a day and will not be spread out so far apart. It will now be on the same schedule as her Keppra, which is nice for us. Also, when talking to the nurse, we found out that her phenobarb level that was taken Friday morning was a 20.5, low for her. Knowing that she is now in the 90's percentile-wise, it's all coming together. She hasn't had another seizure since the one last night. Hopefully this shift in medicine will help for a while. Our next pediatrician appointment is in a few weeks. It will be interesting to see what she weighs by then.
Here are some pictures of Kamryn just being cute in her red and white gingham lady bug outfit. Sorry about the turned pictures, they were all right when I put them on my computer.





telling us all about it...

Saturday, August 16, 2008

Updates...

Kamryn News:
We're at 2 weeks since Kamryn's last seizure. Hooray! Yesterday, she had blood drawn at the neurologists office to check her phenobarb levels after getting her back stable. This will give us a good idea of what level is good for her now. We don't have the number yet, but we'll let you know when we get it back. After her trip to get her blood drawn, she went to cardiologist. The did an EKG checked the blood pressure of all extremities. She still has a slight murmmer, but it much less pronounced than last time we were there. He did not do an echocardiogram to check on the narrowing aortic arch and valve that we were watching to see if it closed. Since her blood pressure was good at her feet still, the valve and narrowing did not seem to be causing a problem. She has a follow up in 6 months, where they will probably do both the echo and EKG. All looked well though... The doc seemed rather surprised with her size and when Scott told him that she was only in the 50th percentile about a month ago at the pediatrician's office, he looked very skeptical. He took her measurments (16 lb, 6 oz and 25 1/2 inches) and said that she is in the 90s as far as percentiles. Quite a change from a month and a half ago. Definitely could explain outgrowing the dose! All is good with that little one, she took the appointments well, didn't hardly cry at either. I guess when you get poked and prodded as much as she has, you tend to get used to it. PS- Her hair is continuing to come out and will likely be near bald by the time her dedication comes around on September 14.

Kenedy Update:
Yesterday was Kenedy's last day at Leslie's house. Leslie is the lady who has kept her during the day since she was 6 weeks old. She'll start "school" on Monday. We've bought her a big girl backpack, lunch box, napmat, the whole nine yards... She seems pretty excited about it. I hope she continues to be once she realizes that Kamryn is still going to Leslie's and she is not. We've been talking it up with her (and so has Leslie) and she is pretty excited. I'll let you know how she actually does next week.

Kenedy and Leslie

Thursday, August 7, 2008

Update - Thursday, August7

Still no seizures since Saturday. : )

We had a neurology appointment today. Not much new, especially since we were just there last Friday with the recent wave of seizures. We didn't run any tests, didn't change medicines, just sat and chatted with the doc.

She obviously isn't outgrowing them just yet, so we'll continue on the medicine and doses that we've most recently updated. We didn't have her blood drawn for a phenobarb level today because the it would probably be artificially high, due to the recent loading doses. Next week we'll take her back and get a level done on her to see what number she is at and know what is works for her.

Ideally, this appointment would have been to talk about weaning her off of medicine, had she not had any seizures since our last appointment, obviously that was a no go. We set another appointment 3 months out under the same hope.

Sunday, August 3, 2008

Update - Sunday, August 3

Today was a much better day for Kamryn. No seizures since yesterday's episode at 6:15pm. She has been plenty awake and alert today. She smiling, laughing, and cooing at me all the way home from San Marcos. (I was sitting in the back seat with the girls. It is just easier to put Wylee in the front to avoid any possible drama between the excited dog and two little girls!)

Otherwise, the trip to San Marcos went well. Jody had fun for his birthday. Most of the group floated the extremely low and slow Guadalupe on Saturday, but had fun nonetheless. Kenedy got to spend the weekend with her best friend Sarah, while Sally and I got to catch up since their move to San Antonio.

Sorry no pics from this trip. Way to much hustle and bustle this weekend with the million and a half people in and out of Jan's house at any given moment. Not to mention all of Kamryn's drama and Kenedy and Sarah running wild. : )
Maybe next time...

Saturday, August 2, 2008

Not Done Yet

Well, we're still not quite through with this round...

After a long fussy and restless day, Kamryn had a seizure at about 6:15 pm. I called the Dr. Kane's cell phone. Since we knew from yesterday's bloodwork that it is likely just that her phenobarb count is not quite up where we need it, he didn't feel like we needed to go to the hospital. He thinks we just haven't found the right maintenance dose yet, so he suggested increasing her phenobarb from 5 ml to 6ml and giving her one extra dose today as a booster. She got that at about 6:30, and has been sleeping most of the rest of the evening.

Hopefully this will be the amount that will work for her. We have the appointment next week and we'll likely draw blood again to check her phenobarb levels and see how these loading doses and increased maintenance doses are working for her.

Friday, August 1, 2008

Another Tough Day

Kamryn slept well last night and woke up bright-eyed and bushy-tailed this morning. I was thinking that the loading dose yesterday had done the trick. But alas, I was wrong.

At 11:30 am Kamryn had a seizure and when I contacted the neurologist (I actually talked to him, not just his nurse!) he suggested coming to have her phenobarb levels taken. So I got us all dressed, headed out, and dropped Kenedy off at Scott's office on the way.

At the neurologist's office/lab, the pulled blood, which Kamryn didn't much care for. However, they got it on the first stick, on the inside of her elbow. Woohoo! No more head shaving!

I figured I'd have her weight checked while I was there to get an idea of how much she's grown since our last bout of seizures. The lab didn't have a scale, so the directed me back to the pediatric practice, who directed me to the actual neurologists office, who made me wait for a nurse, just to get her weighed. All I needed was a scale, I know how to use it; no help required.

While we were in the waiting room at the neurologist waiting for the nurse to come out and help me get her weighed, she had a seizure (around 2 pm). I told the receptionist, who said she'd go get the nurse. It was the nurse and the neurologist that came out to the waiting room for the last third of her seizure. He said I could just go a head and come back so we could talk after he finished with this last patient. (We weren't scheduled to have an appt with him until next week.)

We talked and decided to go ahead and give her another loading dose of phenobarb today, and keep her regular dose at the 5 ml we had changed to to yesterday. He suspected that we had likely just outgrown her dosage. Of course, we didn't have the labs back to confirm that, but it has been the case historically. If for some reason she doesn't respond to this dose, we may have to visit the hospital this weekend.

She got the loading dose at around 3 pm at home, and we packed up and headed out to San Marcos for Jody's birthday. I called the doc around 5pm on the way to check on the bloodwork and he said that her phenobarb level was at a 24, (her happy number is in the mid 30s) and that was after the loading dose we gave her yesterday. So that likely supports our theory that she is just outgrowing the dose and metabolizing it faster. We'll talk in more detail at her appt next Thursday. She hasn't had a seizure since.

Hopefully this is the last you'll hear from me for a while...

Thursday, July 31, 2008

Update - Thursday night, July 31

So, the neurologist's nurse finally calls back around 2:30. The dr's orders were for a loading dose of phenobarb (10 ml) and increasing her normal dose from 4 ml to 5 ml. While Scott was getting the medicine ready, she had another seizure. It really wiped her out and made it difficult to get the loading dose in her, but she took it slowly.
Since the loading dose at 3 pm, she hasn't had another seizure. She's slept a whole lot today, but when she's been awake, she's been pretty alert. Hopefully, this will be the end of it...
I'll let you know...

Update - Thursday, July 31

We heard from the neurologist (actually his nurse) yesterday and all he had to say was that the increased medicine can take a little while to take effect, so let's wait and see how she does. She didn't have another throughout the day and slept well throught the night. We thought that we'd gotten her meds back up to speed.
On the way to daycare today, she had a seizure in the back seat of my car. I had a morning meeting, so she stayed with Leslie until Scott could pick her up. He took her home called the neurologist and then up to work for a meeting he had at 11, where she had another seizure. He then brought her home and will work from there. We still haven't heard back from him or his nurse, but are continuing to leave messages. I imagine he'll have us adjust her phenobarb this time and see how that does. We'll see. That would require us hearing from him first...
I'll update when there's more news...

Wednesday, July 30, 2008

The Six-Week Itch

Apparently Kamyrn's sweet little brain just couldn't take it anymore. A seizure finally broke through yesterday around 5:30 pm. It had been just over six weeks since her last one. We called the neurologist and he made a slight tweak in her Keppra dose (not phenobarb this time), as well as a small loading dose of Keppra. She held steady until 4am this morning, when she had another. It seemed a little longer than normal, but it has been a little while and I may have just lost a sense of how long they are in that time. It didn't seem as severe though, she didn't go completely red/purple, and took a couple of little breaths during her seizure, that she didn't use to do. She pretty much fell straight to sleep after that, as they really drain her. She woke up with another seizure at 5:45am. Luckily, after that one it was in a reasonable time frame to get her morning medicine doses in her. We haven't seen one since then.
We've called the neurologist and haven't heard back.
I'll let you know when we have more news.

Saturday, July 26, 2008

New pictures and all are doing well.

Kenedy and Kamryn had their pictures taken today. It went as well as one would think being it was a 3 year old and a 3 month old. They had their aunt Audra, Grandma, and Grampa in town this weekend so they are having a ball.

Kamryn is still doing well and growing like a weed.

We hope all is well with everyone else.









Saturday, July 12, 2008

The Girls' First Round Rock Express Game

Here are a couple of pics from the Round Rock Express game. It was an employee appreciation event for Scott's new company Advanced Rehabilitation. Daddy and the girls had fun. There was even a fireworks show after the game.
There are also a couple of pics of Kenedy using her new watering can on our flowers.







Wednesday, July 9, 2008

Kenedy's 3rd Birthday

Here are some pictures from Kenedy's birthday party on Saturday. I didn't get everyone in the pictures, sorry. Some were inside, some were outside, and I was never in one place for very long. : )

Come on Sarah, get your swimsuit on...
Ready to swim
Playing in the pool
more pool time before everyone gets there
Time for cupcakes!
Sarah liked them!
Kenedy too, especially the chocolate ones.
and the vanilla.
Scott and Jody
Sally and Richard

Marty
Laurie
Jill and Jason
Opening gifts. This one is from the Smiths. Tinkerbell dress up clothes...
Candyland from Jill


Bevo shirt from Daddy (of course!)
a new sticker book
and puzzles
Reading the card from Chad and Jamie
enthralled with the computer from Chad and Jamie



a jumprope from Tiffany and Kevin...now she can stop using our computer cords!
and pajamas
and a little mermaid watering can!
A Horton the Elephant book from Aunt Linda and Uncle Dan
My Little Pony and a swimming doll from Sally, Jody, and Sarah
a doll bath tub from mommy and daddy
a gaudy purse with a princess bracelet in it from Janma
baby doll bunkbeds from mommy and daddy too
trying on her dress up clothes


Thank you for the presents everybody!