Tuesday, May 5, 2009
Kamryn's 1st birthday was lots of fun. As distorted as my girls' Christmas perceptions will be, Kamryn is starting out the same way with her birthday. She had three celebrations for b-day #1. The first was the day after Audra's wedding, while all of April's side of the family was in town. We had it at Brushy Creek Lake Park in Cedar Park and the weather was fabulous! Lots of friends and family came out to celebrate with us. Unfortunately, Kamryn was not in the mood to party. She cried for a large portion of the party (I can only guess it was because she was overtired from the big weekend up to that point) but she perked up very quickly when great-grandmama gave her a bite of cake. She enjoyed diving in!
Round 2 was at our house on her actual birthday. Nothing big, but she did get to have a cupcake and Kenedy singing to her. That's about it, but fun none the less.
Round 3 was in San Marcos last weekend with Scott's family. It was a big hoopla, as is anything with his family. She was in a much better mood for this party, though. Lots of fun!
Kamryn also had her 1-year pediatrician appt and neurology appointment recently. Her pedi appt went well. He said that she looked great. Her weight has started to slow down a little bit. At 24 lb 11 oz she's only in the 94th percentile now... ; ) She is about 31 inches and in 95th for height and 75th percentile for head circumference. He says that peanut looks great.
As far as neurology, she is officially off of the phenobarbital, after a very slow weaning process. She will stay on the trileptol for 6 more months before we take her off of those, just to be safe. Things are going well there! They did next to nothing at the appointment except get her height, weight and set her next appointment. They think she's looking good as well.
Kenedy is doing well. Still loving school and being the crazy 3-year old that she is. She is a laugh a minute.
Sunday, March 1, 2009
Tuesday, February 10, 2009
Monday afternoon, our service coordinator Judy came out to the house with a nurse to do an assessment on Kamryn to see what services she might need. (If no services are needed at the time, they have a follow along, monitoring program). They asked Scott and I questions about what she does and doesn't do, routines, nutrition, health, etc. and watched her play and interacted with her. The assessment has five components: motor skills, communication, social interaction, self-help, and cognitive development. The results of the assessment will classify Kamryn at a certain age developmentally. All of this is done by comparing what she is and isn't doing to common developmental milestones. All babies vary in these, so being 1 month ahead or behind isn't a big deal; that's why they need to show at least a 2 month delay to qualify for services.
Kamryn scored at 9 months (her true age) on the self-help and cognitive areas. Nothing in those really seem to be a problem. In motor skills and communication she was at 7 months and in social interaction, she was at 6 months. The main motor issues were that she doesn't crawl, pull-up, get herself into and out of sitting position on her own. A occupational therapist's consultation was ordered. Communication was because she doesn't mimick sounds and babble with clear sylables/consonents. The social one was what I didn't think about her being low in...she is the smiling-est, happiest baby on the block and doesn't care who is holding her. However, the fact that she doesn't laugh, doesn't imitate sound or movement, and doesn't drop things intentionally, put her behind here. Sounds like a lot, but every time you turn around she is doing something new. She's about to have the waving thing down, as I type...
So...to continue the process... because of her delays, a plan/goals were developed for her progress. Judy will come to the house once a week to work with Kamryn and teach us ways to work with Kamryn to help overcome some of our slow spots and depending on what the occupational therapist says when they come do an eval, we may be getting some of their time too.
It seems like a lot, but the nurse and the service coordinator were extremely optimistic and don't seem overly concerned. Normally, goals are reassessed every 6 months or so. They expect to need to write new ones for Kamryn in 3 months.
Our first non-evaluation visit is next Thursday. I'll try to remember to post how it goes...
Here are some pictures:
One of many lackluster pictures of the four of them together. When you are trying to get 4 kids under the age of 5 in the same picture, you just have to take what you can get. This was the best of about 15 pictures attempted...
Kenedy loved the party at the gymnastics place...
Nathan and his birthday gang
Having fun under parachute the adults were shaking.
Kamryn liked the ribbon batons
Nathan was Limbo lineleader.