Another good day!
Still no sign of seizures since Saturday morning. She is eating well and it doesn't look like we'll be needing the IV or feeding tube anymore. Hooray!
The neonatologist said that the phenobarbital levels in her right now are a little high, so they are going to skip her dose tonight to try to bring it down. She'll continue on her maintenance doses tomorrow. They may even consider lowering those.
He consulted with the neurologist today over the phone and got the blessing from him to discharge her on Thursday or Friday provided that she doesn't have any breakthrough seizures and keeps all of her other levels steady. That has been the best news of all!
She has an echo cardiogram scheduled for tomorrow and then they'll run a newborn screening on Thursday, other than that she's pretty much done with all of the testing.
We have to set an appointment with the neurologist for early next week and will continue to consult with him after that, but we don't know for how long.
I don't really care how long, at this point. All I know is that she is coming home! : )
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1 comment:
Congratulations, April! I will pray,pray, and pray some more that everything goes well over the next few days, and that she gets to come home.
God Bless you and your family. I cannot even imagine what you are going through, and it sounds like you all are being real troopers, especially Kamryn.
Hang in there!
Amy
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