Early this morning, Kamryn started with the seizure bit again. She had one at 3:30 am, and another at 7:30 am. At this point, the neurologist didn't feel comfortable continuing to up her meds without knowing what her phenobarb levels were. (Me neither!) So, we called Scott's cousin Kyla and asked her to come watch Kenedy while we took Kamryn to Dell Children's Hospital. (The 3rd stop on her tour of Austin hospitals.) We were admitted into the ER around 9:30 am.
After having her weighed and giving her seizure history to no less that 4 different people, she had another seizure. Of course, no doctor or nurse was in the room at the time. But one did come in toward the end of it. The drew her blood to check her phenobarb levels (it only took two stabs this time!) and we found that her level was at a 24, which is low for her. Our neurologist wants it to be in the mid-30s. After phone consultation with the neurologist, they gave her a loading dose of phenobarb through her IV and have us increasing her daily dose to 4 mL as well.
We finally got home around 3 or 4 in the afternoon. She's been sleeping it off most of the day, but when she is awake, she is alert and is gobbling down her bottles. (She didn't get to each at the ER.)
We're hoping this loading dose will be enough to get us back on track. Mostly likely this is just due to her going through a growth spurt and metabolizing her medicine more quickly than she was before. She weighs 11 lb 8 oz now. She's gained over a 1 1/2 pounds in the last two weeks.
We're looking forward to a quiet night, morning, and hopefully several weeks before we have to start this business again.
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