Update - Thursday, June 12 : (

The three week mark came and went fairly unremarkably, until 4am this morning when Kamryn had a seizure. It was like most of them, though we didn't see the entire thing. We woke to a cry and some noises that sounded like those during her previous seizures. By the time Scott got into the room, she was stiffened up, head turned and arm outstretched. She wasn't blue or beet red like we've seen in the past, but she was gasping for air like she had stopped breathing for a few moments.

We gave her a loading dose of pheonobarb, as we'd discussed with the neurologist at our appointment a few weeks ago, but are waiting to hear back from him as far as new amounts for the maintanence doses.

No one knows for sure, of course, but we are assuming that she is just outgrowing her medication. The dose we had her on is just not adequate anymore for her weight.

We were hoping to be done with these, but if we're not, hopefully you won't hear about another for at least another three weeks or more. It is definitely better than the weekly Tuesdays ones.

Here are some new pictures...