Not Done Yet

Well, we're still not quite through with this round...

After a long fussy and restless day, Kamryn had a seizure at about 6:15 pm. I called the Dr. Kane's cell phone. Since we knew from yesterday's bloodwork that it is likely just that her phenobarb count is not quite up where we need it, he didn't feel like we needed to go to the hospital. He thinks we just haven't found the right maintenance dose yet, so he suggested increasing her phenobarb from 5 ml to 6ml and giving her one extra dose today as a booster. She got that at about 6:30, and has been sleeping most of the rest of the evening.

Hopefully this will be the amount that will work for her. We have the appointment next week and we'll likely draw blood again to check her phenobarb levels and see how these loading doses and increased maintenance doses are working for her.