Updates...

Kamryn News:

We're at 2 weeks since Kamryn's last seizure. Hooray! Yesterday, she had blood drawn at the neurologists office to check her phenobarb levels after getting her back stable. This will give us a good idea of what level is good for her now. We don't have the number yet, but we'll let you know when we get it back. After her trip to get her blood drawn, she went to cardiologist. The did an EKG checked the blood pressure of all extremities. She still has a slight murmmer, but it much less pronounced than last time we were there. He did not do an echocardiogram to check on the narrowing aortic arch and valve that we were watching to see if it closed. Since her blood pressure was good at her feet still, the valve and narrowing did not seem to be causing a problem. She has a follow up in 6 months, where they will probably do both the echo and EKG. All looked well though... The doc seemed rather surprised with her size and when Scott told him that she was only in the 50th percentile about a month ago at the pediatrician's office, he looked very skeptical. He took her measurments (16 lb, 6 oz and 25 1/2 inches) and said that she is in the 90s as far as percentiles. Quite a change from a month and a half ago. Definitely could explain outgrowing the dose! All is good with that little one, she took the appointments well, didn't hardly cry at either. I guess when you get poked and prodded as much as she has, you tend to get used to it. PS- Her hair is continuing to come out and will likely be near bald by the time her dedication comes around on September 14.

Kenedy Update:

Yesterday was Kenedy's last day at Leslie's house. Leslie is the lady who has kept her during the day since she was 6 weeks old. She'll start "school" on Monday. We've bought her a big girl backpack, lunch box, napmat, the whole nine yards... She seems pretty excited about it. I hope she continues to be once she realizes that Kamryn is still going to Leslie's and she is not. We've been talking it up with her (and so has Leslie) and she is pretty excited. I'll let you know how she actually does next week.

Kenedy and Leslie